Feliz 2014.....

Mis deseos para el 2014....
wow... es algo que desde que me acuerdo ha sido una tradicion en la casa, las uvas los deseos con cada uva mientras dan las 12... y los suenos de que muchos de esos deseos se pueden cumplir....

Mientras vamos creciendo los deseos van cambiando... me acuerdo que deseaba juguetes, deseaba un coche, deseaba entrar mi carrera, un trabajo.....
Y los deseos tradicionales.... Salud, dinero y amor....
Y el infalible... BAJAR de peso......

Y hoy.... empiezo a pensar en mis deseos para el 2014... que deseo???

Y finalmente pienso...  que estaria en la lista??
Lo tradicional... por supuesto, el infalible .. sin duda ( hay que continuar con la tradicion no?) pero aparte de eso.... que quiero???

Nada....
Pero Ojala tuviera mas paciencia para poder continuar mi vida con Gabby
Ojala mas gente tuviera iniciativa para crear mas programas que ayuden a Gabby y ninos como Gabby para vivir una vida normal
Ojala hubiera una forma mas facil para estar cerca de la familia y los amigos....

Mis suenos son grandes y muy dificiles.

Sueno que puedo ver la vida como Gabby la ve para poder entenderla mejor
Sueno que Gabby puede hablarme y decirme que piensa
Sueno que puedo darle a Gabby la habilidad de ser como los demas sin perderse a si misma
Sueno que Todos pueden entenderla comprenderla y amarla tal como es....

Cuales son tus suenos??

Feliz Navidad!!!

Cena... Lista
regalos... Listos Envueltos y bajo el arbol
Mesa... bella....
.... Que tu marido se enferme a unos minutos de que lleguen tus invitados..... priceless.....

Merry Christmas!!

Im grateful

So after our failed Thanksgiving day....  my husband, my hero... really got me back to reality...  he just said.. are you surprised? didn't you expected something like that?

I must admit... I always think I can predict Gabby's behaviors, her wants and needs and all Gabby situations possibles.... But I have to be reminded... the unpredictable will always be there... Its so easy to fall into a very strict routine to make it work that I forget to expect other outcomes.

This year I didn't get to sit with the family for dinner... but I'm grateful....

• For having understanding family members who didn't make us feel bad because we couldn't stay
• for not giving us a hard time for having a spoiled kid who does what she wants, but more understanding that YES she is different, and tonight wasn't her night....
• For having friends who I can call and tell them the story and they will laugh with me ...
• For my hero, mu husband who patiently waited for the green monster ( me) to calm down and quickly found a place who luckily had a thanksgiving plate!! (yeah how about that???? )
• and again for my family who put up with us again on Saturday and let us come over again and have a do over.... even when Gabby was done after finishing her meal....

It happens... I can predict her anymore... I have to be prepared... and will continue to carry a big tote bag and feel like Mary Poppins... with infinitive amount of "in case she needs it" items.....

and I'm grateful because she gives me that smile that makes me feel that despite the changes on her routine... she is a happy girl...

Having Autism during Thanksgiving...

 

For most of our autistic families, "be ready for the unexpected" is a must.

Going out of the routine is a sin.... and you pay the consequences... regardless of the time of day or the place you  are,.. even the people who are around you.

 

this time... I can say.. I should've known....

 

So here is the Thanksgiving story of 2013.

 

We were due to go to my brother in law's place... our planning included coming almost to the time dinner was going to be ready and almost at the table, as we know Miss G. is an impatient one and dinner time is always at the same time no matter where we are....

Sure enough we arrived but night time is almost on us... Mistake number one... We should've leave earlier specially when going to a place we dont visit except for the holidays.

Mistake number 2... we forgot to explain to Miss G where were we going and who we were going to see... ( except we didnt have pictures of the family!!)

Mistake number 3... suround her by most family members asking her to get out of the car.....

 

I was ready to cry... I was hungry and really looking forward to this time... Food is always amazing!!! my mother in law cooks delicious!!! I love her Thanksgiving dinners.... My sister in law makes an amazing sweet potatoe casserole... ahhh... well... you get the idea...

 

After 20 minutes of fruitless efforts...  we left... my stomache growled.. my husband was just hoping that at least the chinese place was open because Wife was becoming the green monster.....

the ride back home has never been so awful!!!

 

we were passing houses that their driveways were full of cars and I could imagine the families getting together, eating all the yummy food....

and Gabby in her car seat just chilling with her ipad....

 

Well... Im still gratefull for her in my life... because she makes it interesting... and unpredictable.

Maybe next reunion... we will make it to the door!!.

 

Happy thanksgiving everyone...!!

  

 

Lo bueno lo malo y lo... asqueroso????

Ok.... Hablando de la vida contidiana con Gabby, casi siempre menciono la alegria que me da... los avances que tiene.. y casi todos mis post han sido muy positivos con la idea de que quien los lea tenga una actitud positiva para personas como mi hija.
Mi idea ha sido siempre mostrar el lado bello de la vida cuando tienes que lidiar con dos diagnosicos en la misma persona... lo que hace a mi familia muy peculiar....
 Pues bien... como en cualquier familia hay de todo un poco...
Y Dios mio!!!! Gabby cuando decide hacer me ver mi suerte... es en verdad en grande!!

Mi historia es en dos dias.... que empezo el domingo... cuando despues de dos dias de esperar por #2..... llego en grande....
no voy a entrar en graficos porque para que dar mas asco no??? pero digamos que si recuerdas que los bebes cuando empiezan a salir sus dientes, sus estomagos actuan totalmente diferente.... y en pocas palabras... tienes que cambiar panales seguido no??

Mi ventaja es que Gabby no le gusta hacer # 2 en sus pantalones... asi que cuando quiere ir... te avisa y va al bano como nina grande que es....
Pero como escuchamos que le duelen los dientes me imagine que algo asi iba a suceder....

la regla escolar dice que si tienes diarrea.. no puedes ir en 24 horas.... asi que Gabby se quedo en la casa el Lunes.....

Pues bien despues de desayunar me dice con su maquina "I want to go out, I need shoes".... Y fue por sus zapatos....

Yo pense que alegria porque podiamos salir a caminar y llevar a Mia a su caminata del bano no??

pues no.... ella tenia otros planes... que incluian ir a la moto.... aunque olvidamos la llave!!!
pues bien despues de intentar prender la moto sin exito.... y justo cuando ella ya habia decidio regresar a la casa, ve en la casa de los vecinos la resbaladilla...
Pues sin pensarlo dos veces corre hasta las escaleras y sube ... mientras yo hablo a mis vecinos a pedir permiso para usar sus juegos.... y que voy caminando para ver  por donde va a bajar.... y una pequena (GIGANTE) serpiente!!!!!! justo donde desemboca la resbaladilla!!!!!
ME MUEROOOOOOOOOOOO
COMO????? una serpiente??? y yo con la perra??? mi hija a punto de bajar y va a caer justo encima de la culebra esta?????
Instinto de mama y de desesperacion absoluta y a punto de usar mis manos para alejar semejante animal.... bendito Dios encuentro una rama lo suficientemente larga y  logro mover a este animal....
 y  en ese momento ella baja sin haberse dado cuenta que mama casi tuvo un colapso nervioso.....

mama la abraza y regresamos a casa.... logro hablar con mis papas y les cuento mi aventura en la Jungla..... y reimos,....

Solo para subir y llevarla al bano... me imagino que de la diarrea de ayer y el susto de hoy es posible que  necesite ir....

Pues vamos al bano y nada... Y pienso... creo que no hay problema y manana puede ir a la escuela...

regresamos a mi cuarto y me pongo a arreglar la ropa que acaba de salir de la lavadora, y ella entra a su cuarto.... luego escucho una segunda puerta que se ha cerrado.... Uhmmm... y que paso??
entro a la escena del Crimen!!! OMG.....
alguien ha hecho del # 2 en el cuarto.... y alguien mas ha usado eso como crayola, como pintura de guerrero en el cuerpo y el olor.... Dios mio.....

Mia mi perra sabe que ha hecho algo malo y ha salido corriendo del cuarto a encontrar refugio quien sabe donde... Gabby que esta totalmente cubierta de este asco... no tiene escapatoria y tiene que entrar al bano.. donde mama prosigue a banarla con agua caliente y mucho mucho mucho MUCHO jabon, shampoo y acondicionador.... creo que le lavo el pelo dos veces... le paso el cepillo de dientes y el de cuerpo otro tanto.... y aun asi no puedo creer si esta completamente limpia....

La llevo al cuarto y en mi rabia la dejo en su cuarto.... mientras voy a limpiar la escena del crimen.....
La lavadora de alfombras no quiere funcionar para mi y marco a mi esposo que con mucha calma me dice no te preocupes ya voy y lo arreglo....
Estoy viendo rojo!!!!

Pero el llega y rapidamente lo arregla.....

ahhh las 4 de la tarde.... que me espera el resto del dia???




"Cuando te toca ni aunque te quites... Y cuando no ni aunque te pongas"- Epifanio Vargas... La reina del Sur......

Love my hobby....

I have always or as long as I can remember a craft person... I know I take that from my mom... all my memories as a kid are filled of my mom doing something crafty... from 3D pictures, to stuff animals, learning how to bake...... and everything in between....

I love having that from my mom... Even when we are living far from each other... I have that with me all the time....

Well.. There are many crafty things that I had always wanted to do.... and lately I took on youtube and some friends to learn to knit and crochet.... and had a blast....

Soon.. I wasn't happy with just learning stitches.. I wanted to do more... and in a few weeks got to make some blankets for our winter afternoons by the fire....

Then.. my little one took it to her room... and DUH>>> how come I haven't make one for her....

so got new yarns.. and got to it.... it was the best feeling seeing that blanket "grow"... row by row... color by color my excitement was getting bigger....
Gabby was eyeing me all the time... and from time to time she would pull the big mass of colors and cover herself....

I finish it.... it turned out to my eyes ok.... but what got me to feel amazing was that Gabby took it to her room as soon as I was done and showed it to her.....
She has been sleeping with that blanket the whole year....

Now i understand how my mom loved to do her stuffed animals... because we would have them after she was done making them....
what an amazing feeling....

What if....

Have you ever though if something you did in your past.. would've have affected your present??

I mean.. I look at how my life turned out. The friends I have and had, the decisions I made, the paths that I took.. all were just driving me to this moment.

I am a God believer... I do think HE has draw a book or a road for us to follow... there are signs everywhere that guide us to where we are now... or where we were supposed to be.. and the choice is always ours to follow or not....

So... I think I did follow them... I loved my friends and I loved my jobs.... I love that I was able to take these decisions....
If i didn't maybe I wouldn't be the luckiest mom of Gabby.... She wouldn't be here today!..
I cant imagine what life would be if i wasn't made to be her mom....
Yes I get tired... Yes its hard.... but its so worth it...
Everyday I wake up to her voice is another blessed day,... Every new day is an opportunity to witness a miracle right here right now.

Im one lucky girl... who met the right guy to raise this wonderful girl....