You see, Gabby is in between, we are not a right fit for the Down Syndrome groups... or the Autistic ones.. although more and more I find us relating more and more into the Autistic world...
Watching the movie gave me some hope.
I really haven't put a lot of though on the future for Gabby. It is very overwhelming as it is right now, enough to just focus on our present and figure out how to make it work today, this week, and plan just a week ahead, next month... enough to plan her next year IEP, small things... But her future?? what will she do when she is a teen? an adult? what will her life be like? what kind of job will she have? hobbies? interests? friends??
I really have a hard time setting my mind into thinking about that. Not an easy task. Yet I saw this woman having an amazing life in her own way, tons of struggle with the society who cant understand what life for an autistic person is like... and here I have Gabby... who is more particular that most... but with the same challenges (or more maybe) than Temple....
But then, I saw something great... Mom related to her sister, her teachers, and never gave up... I watched a second time the movie, but with the comments from Temple herself and other production people... the one thing she said was.. My mother pushed me... she made me keep going.. we cant just let our kids stay without a change...
and I just came back from yet another meeting at her school, asking for better services, for things I know she can do. for things I know she needs and just needs guidance in order to achieve..
My daugther might never be like Temple... but she will be GABBY... herself and no one else. but it is my job to push her.. and never let her fall behind.
I have a wonderful husband who has been there supporting me on this, keeping me calm when things go insane.
He might not be at her therapies but he is there when I need him to be.
It does take a village...... but we will make it work...
No comments:
Post a Comment