In a "typical" family, you are set to think about the best schools so your kids can excel in academics and/or sports.
You go to as many meetings, you go to the social clubs, attend birthday parties, have play dates, cheer on the sidelines for your kid who is playing .....
Your concern is mostly that they don't skip class that they complete homework and get good grades so they can have a chance at a good College.
A lot of people start saving for that tuition, others are lucky to have scholarships and the not so lucky will end having to get the best paying jobs possible to re pay the loans for their education....
So far... am I on the right track?....
Well, My family is NOT typical, but we want the best education Gabby deserves, we wish we are invited to birthday parties and playdates, we attend special needs sports, ( baseball, basketball, soccer, swimming, and horseback riding)
She can't get "grades" but she gets measured by her own goals. We try not to skip school, but doctors appointments and lack of sleep make it hard.
Yet... we can't plan for College... there is not such thing for us....
Desperation will set in soon.... as school will be provided until she turns 21. and then.... WE are on our own.
Jobs? for a lady with Down Syndrome, Autistic and non verbal? hummm... haven't seen that anywhere.
College opportunities...? nope... nothing like that either....
an apartment? really??? how will she live alone? or pay the bills? when she cant get a job?
Scary ? yeah... but not so much as to think beyond jobs and room....
What will happen when Mom and Dad are not here any more? What will happen if we can find a place for her that will care for her the same way we do?
who will be there for her?
then... I can say,.. That it's scary. That is a reason to have anxiety....
No comments:
Post a Comment